Ask the Founder
VBF Announces "Ask The VBF Founder." Linda Rozell-Shannon is the leading lay expert (non doctor) in the world on the subject of vascular birthmarks.
Babies with Birthmarks™
Our newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.
Recent Medical Papers and Research
Welcome to the Australia Chapter of the Vascular Birthmarks Foundation, VBF Australia!
Every year in the United States, 40,000 children are born with a vascular birthmark, 85% of which are in the head and neck area. Statistics show us that the incidence is the same in other countries. These birthmarks include:
No one knows why vascular birthmarks occur, but treatment guidelines are changing.
Has your baby developed infantile hemangioma, also known as strawberry birthmark?
Three centres in Australia are conducting a research study looking infants with proliferating infantile hemangiomas (IHO) that require medication. This study will evaluate the use of an investigational drug, V00400 SB (also known propranolol) in the treatment of hemangiomas.
THIS STUDY MAY BE APPROPRIATE FOR YOUR CHILD IF HE/SHE:
Infantile hemangiomas (IH) are red blemishes or bumps made up of small blood vessels. They affect around 3 to 10% of children born, and may appear on the head, face and neck in approximately 50% of cases. They are often not present at birth and usually become more obvious in the first weeks thereafter. Although many IHs shrink and disappear without medical intervention by the age of 10, some do not and may cause residual lesions and/ or complications including vision and airway obstruction. Current IH treatments include surgery, laser treatment, cryotherapy, corticosteroids and vincristine. The HEMANGIOL study looks to explore a new possibility by determining whether a treatment that is already licensed and used for various conditions in adults can reduce hemangioma growth in infants aged 35 – 150 days. The HEMANGIOL study will compare a placebo to propranolol in approximately 450 children with IH worldwide.
If you wish your child being seen to evaluate potential participation in this clinical trial, please contact:
- Sydney Children’s Hospital (Randwick - Sydney) - Dr Orli Wargon
- Royal Children’s Hospital (Melbourne) - Dr Roderic Phillips
- Box Hill Hospital (Box Hill - Melbourne) - Dr John Su
VBF Launches Day of Awareness - We need 25 families
Thank you for your support of VBF and the VBF International Day of Awareness.
Many of you have participated every year, since its inception on May 15, 2004. Families and individuals have hosted annual bake sales; garage sales; sold stickers, bears and bracelets; celebrated a birthday by hosting a party for VBF; were featured in newspaper and magazine articles and local television news programs – the list goes on…
There is really no proper way to thank each and every one of you for support, and for raising awareness of vascular birthmarks and the associated syndromes and conditions. VBF has one amazing support network.
As you know, the downturn in the US economy has had an impact on all aspects of life, including charitable giving. Donations to VBF are down 40 percent, while the free services VBF provides to patients and families have continued to increase. For this reason, your continued support of Day of Awareness is more vital than ever.
If you haven’t participated in VBF Day of Awareness, please join the VBF family of tradition and giving by hosting an event in your community: http://www.birthmark.org/awareness
It’s never too early to plan your event! Visit the VBF Day of Awareness website today to register your event, or for ideas on how you can help. Here are some helpful links to get you started:
Remember, May 15 is Day of Awareness, but events can be held any time during the year.
THANK YOU VBF FAMILIES AND FRIENDS!
Port Wine Stains: Clearance, Cure, and Recurrence
What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission. Every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.comIf you think your child has a hemangioma Click Here.
Chapters of the VBF
Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks
Publications for Parents:
You will need Adobe's Acrobat Reader to open and print the pdf documents. If you do not already have it installed, you can find it here.
You will need Microsoft's Word to open and print the Word Documents.