Expert's Corner

 

 

Ask the Founder


VBF Announces "Ask The VBF Founder." Linda Rozell-Shannon is the leading lay expert (non doctor) in the world on the subject of vascular birthmarks.

 

Babies with Birthmarks™

Our newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.

Recent Medical Papers and Research

New Research Out of Boston


Dynamic Cooling Paper by Dr. Nelson and Wangcun Jia


Arterio-venous Malformations Powerpoint Presentation


PWS paper by Dr. Mihm and L. Rozell-Shannon


SWS Glaucoma Facts by L. Rozell-Shannon and Dr. Fay

Test for Birthmarks

Psychosocial and Emotional Issues for Individuals with a Port Wine Stain

Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

Ulcer Care and Treatment (pdf)

New Topical Treatment for Hemangiomas Reported by AMA

A recent article published in “Challenges in Medical and Surgical Therapeutics” by the American Medical Association (www.archdermatol.com), July 2002, reports the successful use of a topical agent called “imiquimod” to treat typical infantile hemangiomas. Imiquimod – an imidazoquinoline amine – is an immune-response modifier that acts by affecting the innate and acquired immune response to challenges.
In the medical report, the imiquimod is used as a topical cream to treat hemangiomas.

Dr. Martin Mihm, Jr. (VBF’s Research Director and Scientific Advisory Committee Chair) and Dr. Igancio Sanchez-Carpintero (recipient of VBF’s First Physician Education Grant) along with Dr. Paula North (of Arkansas Children’s Hospital) and Dr. Maria Martinez (Clinica las Americas, San Jaun de Puerto Rico) authored the history-making journal.

Topical 5% imiquimod cream was initially used 3 times per week on two infants diagnosed with hemangiomas. The families of the children treated with this cream were happy with the option and the result. Current therapies include steroids, laser therapy (oral) and steroid injections and surgery. The topical cream is a welcome option to the more aggressive therapies and offers a great deal of hope to families with children diagnosed with hemangiomas.

This medical journal reports for the first time the apparent positive results from topical application of the immune-response modifier “imiquimod” in the treatment of proliferating infantile hemangiomas. Dr. Mihm is currently coordinating a more extensive study with pathologic correlation and mechanism oriented investigation. If successful, the imiquimod cream could change the way children with proliferating hemangiomas are treated world-wide.

Parent's
Corner



Information for Parents

DOA Logo
Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness


Good Search

What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission... every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com

If you think your child has a hemangioma Click Here...
hemangioma
If you think you or your child has a port wine stain Click Here...
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here...
Before and after of venous malformation

VBF Chapters and Partners

VBF

VBF Europe

VBF Latin American

VBF New Zealand

VBF Australia

VBF India

VBF Africa

VBF Asia

Sturge-Weber Syndrome Community

SWSC-Canada

Partners

Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks



Publications for Parents:

  • VBF Vascular Birthmarks Brochure - Download and Print - A comprehensive brochure describing all vascular birthmark types, syndromes and treatment options. To print, click here (you will need the Acrobat Reader to view and print this document).
  • Doctor Visit Survey Have you been seen by a doctor to assess a vascular birthmark? Please click here and complete our survey. This survey will be used to provide feedback to the doctors about the information and treatment they provide to families affected by a vascular birthmark. Complete your survey and mail to Corinne Barinaga, VBF Director of Information Services, 17309 NE 29th St., Vancourver, WA 98682.
  • Before you visit, email, or speak to a birthmark specialist, be sure to read our Checklist for Parents!
  • Dr. Rosen's Vascular Birthmark Information for Parents
  • Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

You will need Adobe's Acrobat Reader to open and print the pdf documents. If you do not already have it installed, you can find it here.

You will need Microsoft's Word to open and print the Word Documents.

RECRUITING SUBJECTS FOR A RESEARCH STUDY ON FACIAL BIRTHMARKS