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Surveys
VBF has a number of surveys designed to help us study and learn.
- VBF Survey
In order to complete this valuable survey at your leisure, we have
included a .pdf version of it for printing and mailing. To use the
.pdf version, you must have a copy of Adobe's Acrobat Reader, which
is available here.
This survey is to be completed by the parents of children with
hemangioma. The information will be used to provide summary data
and will prove useful for future work by the VBF. All information
will be kept in the strictest of confidence.
VBFSurvey.pdf
- Doctor Visit Survey
VBF would like to assess your visit(s) or communication(s) with
any doctor(s) regarding your quest to learn about a birthmark type,
treatment options or prognosis. You do not have to put your name
on this survey, but you need to put the name of the doctor(s) on
the survey so that we may assess the quality of information that
was provided to you and the manner in which it was provided. We
will be sharing this information with the doctor(s) so that they
can evaluate their manner of presenting this information to families
affected by a vascular birthmark and the quality of that information.
We believe that the doctors need to know how the families feel about
their visits. We hope that based on the findings, they will view
this as an improvement opportunity. We also want to use this as
an opportunity to share with doctors who are doing an outstanding
job. We ask that you fill out one survey for each doctor that you
have seen. If you cannot remember the exact date of a visit, put
the closest month and year that you can remember. If you had multiple
appointments with this doctor please base your responses on your
general experience with this doctor. If the experiences differed
drastically for each appointment, please fill out a separate survey
for each appointment you wish to evaluate. Fill out as much information
about the name and location of the doctor as possible. Results will
not be shared publicly, but will be shared with the individual doctors.
VBF Doctor Visit Survey
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Parent's
Corner
Information for Parents
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Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness
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What if the VBF earned a penny every time you searched the Internet? Now it
can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social
mission... every time you use GoodSearch, money is generated to support the
mission of VBF. Just go to www.goodsearch.com
and be sure to enter the Vascular Birthmarks Foundation as
the charity you want to support. The more people who use this site, the more
money we'll earn so please spread the word! Go
to http://www.goodsearch.com
If you think your child has a hemangioma Click
Here...
If you think you or your child has a port wine stain Click
Here...
If you think you or your child has a venous malformation Click
Here...
VBF Chapters and Partners
Publications for Parents:
- VBF Vascular Birthmarks Brochure - Download and Print -
A comprehensive brochure describing all vascular birthmark types, syndromes
and treatment options. To
print, click here (you will need the Acrobat
Reader to view and print this document).
- Doctor Visit Survey Have you been seen by a doctor to assess
a vascular birthmark? Please click here
and complete our survey. This survey will be used to provide feedback to the
doctors about the information and treatment they provide to families affected
by a vascular birthmark. Complete your survey and mail to Corinne Barinaga,
VBF Director of Information Services, 17309 NE 29th St., Vancourver, WA 98682.
- Before you visit, email, or speak to a birthmark specialist, be sure to
read our Checklist for Parents!
- Dr. Rosen's Vascular Birthmark Information
for Parents
- Simple things you can do to manage KTS (Dr.
Delfanian and Linda Shannon)
You will need Adobe's Acrobat Reader to open and print the pdf documents. If
you do not already have it installed, you can find it here.
You will need Microsoft's Word to open and print the Word Documents.
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